HER2 Support Group Forums - View Single Post - Roll call for premenopausal Her+ and some hormonal positivity

Janelle · 06-21-2008, 02:01 PM

Thanks, Tricia. I actually just listened to a pod cast by Dr. Sledge that I found on this board. In the last 2 minutes of the 30 minute podcast, he stated that he thinks it is possible that hormonals don't work as well in Luminal B cancers (which we are) but studies have not been done to conclusively show this so we may be in an "overtreated" group. He said he did not expect the standard of care (hormonal therapy) to change anytime soon.

06-21-2008, 02:01 PM	#3
Janelle Senior Member Join Date: Nov 2007 Location: Brentwood, CA Posts: 76	Thanks, Tricia. I actually just listened to a pod cast by Dr. Sledge that I found on this board. In the last 2 minutes of the 30 minute podcast, he stated that he thinks it is possible that hormonals don't work as well in Luminal B cancers (which we are) but studies have not been done to conclusively show this so we may be in an "overtreated" group. He said he did not expect the standard of care (hormonal therapy) to change anytime soon. __________________ Janelle Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS Stage 1c triple positive, no node involvement but vascular invasion multifocal disease Lumpectomy November, 2006 A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008); Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007 Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)