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Re: Ugh Brain Mets!
Hi everyone! Just an update - I'm still doing good - I had my second treatment this week and I am scheduled for the final one next week. Definitely the worst part of this is the Dex, my skin is breaking out and I am acting crazy! Embur that is interesting that it is like the manic phase of bipolar, it does feel like that. It is a bit better since the dose was cut. Also Nurse thank you for the advice on the Ativan, that worked for me and I am sleeping better than I was. The other issue is a bit of fatigue like embur described and some confusion at times, but really not too bad. I am still working as I can. I can't drive because of the seizure (6 months restriction Washington state) but getting by with lots of rides from coworkers, family and friends.
Some of my craziness - I'm now a strawberry blonde, redid My wardrobe mostly lululemon and still cleaning the house on a daily basis. Last night I woke up at 2 and decided I needed to cook some bacon.....Dex taper will start after next treatment sometime, my poor husband will be so relived I am sure....
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2009: dcis rt side, mastectomy, no chem or rads
2009: rt recon implant.
Jan 2014: stage 4. pain right side, found "too many to individually account for" liver mets. Found right axilla lymph nodes and nearby mass (source). Lung, lymph and bone mets. Brain clear by MRI. Er and pr neg, HER2 +++
Feb 2014: herceptin, perjeta, taxol
July 2014: no active disease, only bone scars and 1 liver scar! Tumor markers all normal again.
Dec 2014: seizure, 3 brain mets (15, 5 and 3 mm)
Feb 2015: Linac Stereotactic Radiation for brain mets
June 2015: no new brain mets, old ones greatly reduced in size. Bod still no active disease
October 2015: New brain Met, zapped by Stereotactic rads, watching another spot
Jan 2016: The other spot grew, zapped again. Still on herceptin and perjeta every 3 weeks
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