Thread: Ugh Brain Mets!
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Old 01-06-2015, 02:27 PM   #3
Rolepaul
Senior Member
 
Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 389
Re: Ugh Brain Mets!

Wife has been there, done that three times. Gamma Knife commonly will make you nauseous, and the steroids help. It will potentially cause minor hair loss, but it should not be significant. Brain mets need follow up MRI scans, preferably at the best place you can find. Know that if the Gamma knife does not work (it is 70% effective), that the options are there and your doctor may not know about them.
Dex steroids and Keppra will make you rough to be around, so do things you hate to do and blame your anger on having to perform those tasks. That way you do not blame the disease. Two to three weeks and you are good to go.
Balance might be an issue for a short period. The MRI scan after the Gamma Knife (actually the one about four weeks after the procedure) should be the all clear to go skiing, dancing, cheerleading or similar activities. Try not to do things that cause your head to shake significantly. Nina slept with a back pillow in a chair for the first week.
Make sure the doctors follow up with evaluations every 60 to 90 days.
And email onto this board so I can read how you are doing. It is not a death sentence or a shortened life span if you do the things needed. Tell the doctor you are in contact with someone that had brain lesions five years ago and that she is now in remission totally.
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