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Hi Jennifer, Is Joy due for any scans? I don't know anything about Ixempra. I'm sure you will get responses from those who do. Joy is such an inspiration to me. Don't let her give up and definitely tell her doctor everything. I had severe lower abdominal pain and my PET/CT said I was clear. The pain got worse so I had a CT with the 2 hour drink and contrast and it showed a large mass smooshed between my intestines. It was very thin so almost undetectable but about as big as the average size hand. It was very painful and spread quickly. I'm glad I kept complaining and got scanned again. Please let Joy know that we are all thinking of her. Sally
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Dx March 2004 HER2+ er/pr+ 8/16 + lymphnodes mets to the liver Stage IV / 6 cycles of TCH and 33 rads . NED Continued Herceptin 3 years w/ Femara. Tumor markers start to rise in Jan of 2007 and swiched to Tamoxifen. August of 2007 found more mets to liver and lymphnodes outside of liver. Went on Tykerb/Xeleoda--spots on liver gone found large mass between intestines. March 2008 started TCH. Stopped Carboplatin due to allergy. Still on Taxotere and Herceptin. Nov 2008 mass is gone. 3 new spot on liver and one on spine. Radiation on spine. tykerb/gemzar for liver mets. PET in April 09 showed shrinkage still a little activity, continue tykerb/gemzar until Aug 09. PET showed new spot on my spine more on my liver and a bunch of enlarged lymphnodes in upper chest. Start Adriamycin Sep 09. more radiation on spine . April 2010- Still on Adriamycin 3wks on 1 wk off and zometa every 28 days. PET -May 2010 showed progression. Starting Herceptin/Navelbine on June '10
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