HER2 Support Group Forums - View Single Post - Access to T DM-1

phil · 10-25-2011, 08:56 AM

Roche/Genentech are starting trials in Europe w/ T DM-1 . Contact Gen. for details.
Re platelets, blood counts while on t dm-1. Someone e-mailed me about sharks liver oil. Lorraine has been taking it , along w/ chlorophyll, and 1,000mg. folic acid. The sharks liver oil seems to have helped her red counts actually ris to their highest level in 5 yrs. Not 100% sure, also, may be helping her plats stay in 60,000 -70,000 range. Along w/ dose reduction to 3.0, spacing tx's out more. We didnt start these supplements until after 7 full strength doses, and plats dropping below 75,000. Who knows if we had started earlier. All part of the learning process for those of you on t dm-1 , or starting.
That was the flexible plan for Lorraine in Va., that Genentech has now tried to change. And Partners IRB in Boston is delaying.

10-25-2011, 08:56 AM	#51
phil Senior Member Join Date: Nov 2010 Posts: 393	Re: Access to T DM-1 Roche/Genentech are starting trials in Europe w/ T DM-1 . Contact Gen. for details. Re platelets, blood counts while on t dm-1. Someone e-mailed me about sharks liver oil. Lorraine has been taking it , along w/ chlorophyll, and 1,000mg. folic acid. The sharks liver oil seems to have helped her red counts actually ris to their highest level in 5 yrs. Not 100% sure, also, may be helping her plats stay in 60,000 -70,000 range. Along w/ dose reduction to 3.0, spacing tx's out more. We didnt start these supplements until after 7 full strength doses, and plats dropping below 75,000. Who knows if we had started earlier. All part of the learning process for those of you on t dm-1 , or starting. That was the flexible plan for Lorraine in Va., that Genentech has now tried to change. And Partners IRB in Boston is delaying.