HER2 Support Group Forums - View Single Post - TIPTOE & Friends

StephN · 12-27-2008, 02:38 PM

Hi everyone -

The Kids have been making the rounds a little more slowly than the 10-day earlier schedule - but that is fine.

Brenda - have not heard from you lately. Have you sent them on to Sheila yet??
Weather has been SO awful, that it was probably wise to wait a bit till after the crush of holiday mail.

So - here is the next list, unless there are corrections I am not up on:

1. Brenda to Sheila

2. Sheila to Jacquie (Woman of Steel)

3. Jacquie to Marlys in Boise

4. Marlys to Laurie for the birth of her son
(Laurie - we need a good date to work around so as not to miss the Big Event - may have to do a little switching)

Joe is right to be concerned for the Kids safety. I don't know HOW many people tried to take them from our HER2support exhibit at the AACR meeting in April. Our mascots were there mainly because I had them (except the chicken we picked up at that meeting) and Maryann (Dubois) wanted to take them to the other end of the country from there!

12-27-2008, 02:38 PM	#30
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Hi everyone - The Kids have been making the rounds a little more slowly than the 10-day earlier schedule - but that is fine. Brenda - have not heard from you lately. Have you sent them on to Sheila yet?? Weather has been SO awful, that it was probably wise to wait a bit till after the crush of holiday mail. So - here is the next list, unless there are corrections I am not up on: 1. Brenda to Sheila 2. Sheila to Jacquie (Woman of Steel) 3. Jacquie to Marlys in Boise 4. Marlys to Laurie for the birth of her son (Laurie - we need a good date to work around so as not to miss the Big Event - may have to do a little switching) Joe is right to be concerned for the Kids safety. I don't know HOW many people tried to take them from our HER2support exhibit at the AACR meeting in April. Our mascots were there mainly because I had them (except the chicken we picked up at that meeting) and Maryann (Dubois) wanted to take them to the other end of the country from there! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.