HER2 Support Group Forums - View Single Post - TDM1 EAP -Good news for those in TDM1 EAP who need to travel

Chelee · 05-29-2011, 03:02 PM

At least that's a start and I'm sure that will help some of the ladies that are traveling so far. I know Genentech has received alot of calls about how difficult, or should I say near impossible for many of us ladies to get to these EAP sites. I've personally made serveral calls myself over this one issue. The financial aspect of it's a deal breaker for so many.

I still hate to hear it will be another 3 months or so. That's a long time in a stage IV's world with all the appts we have...along with the fatigue and all that comes with it. But it is nice to see they are working on it. I am sure Genentech has been inundated with calls about T-DM1 and all the issues surrounding it. I just wish the FDA would give it's final approval and be done with this. Thanks for sharing this news with us Chris....surely appreciate it.

Chelee

05-29-2011, 03:02 PM	#2
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: TDM1 EAP -Good news for those in TDM1 EAP who need to travel At least that's a start and I'm sure that will help some of the ladies that are traveling so far. I know Genentech has received alot of calls about how difficult, or should I say near impossible for many of us ladies to get to these EAP sites. I've personally made serveral calls myself over this one issue. The financial aspect of it's a deal breaker for so many. I still hate to hear it will be another 3 months or so. That's a long time in a stage IV's world with all the appts we have...along with the fatigue and all that comes with it. But it is nice to see they are working on it. I am sure Genentech has been inundated with calls about T-DM1 and all the issues surrounding it. I just wish the FDA would give it's final approval and be done with this. Thanks for sharing this news with us Chris....surely appreciate it. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.