View Single Post
Old 01-13-2010, 12:59 PM   #2
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Re: How can I keep my mother positive?

Rosa,
First of all, there is much to be hopeful for. Do not lose heart, and do not let your mom, either. True, you "don't understand" - nobody who hasn't been through this can, really. But that doesn't mean you have nothing useful to offer.

You have come to a good place for support - there are many many people here who are actively in the fight, many who have already completed therapy, and others who, like you, are trying to offer support to loved ones.

I wonder if you can clarify a couple of things.

First, I'm troubled by the side effects you describe. It seems pretty extreme. Are these related to your mom's treatment? My assumption is yes, as your mom was treated with lumpectomy and you have not said anything about evidence of other issues.

Everyone responds to treatment differently in terms of side effects. What chemo is your mom taking? Some are tougher than others. But they do work well on Her2+ cancer, and with the Herceptin this type of cancer (which used to be a poor prognosis) is now very treatable and has a favorable prognosis!

Regardless of what combo she is on she should discuss these immediately with her doctor or oncology nurse - there are lots of meds that can prevent or manage a lot of the side effects of treament. When I had chemo, I had several "premeds" to prevent nausea, infusion reactions, etc.

I also had additional meds to take home, with instructions to take at the first sign of problems as it is easier to get under control before it's out of control so to speak.

It is not fun, but most chemos these days are definitely "doable". Help is available and although I can understand her feelings, the doctor is trying to kill any stray cancer, NOT kill the patient! Expect/demand that the doctor works with your mom to mitigate the side effects.

The whole idea of dealing with cancer, and having chemo, is quite depressing in itself. If you also feel totally crappy from the treatment, it can make you feel like what's the point. BUT, people do get through it, and your mom can too. She needs some support in managing the side effects for sure.

I know you will get many encouraging responses from people who are doing it, and have done it.

Cancer suck, but life is still good - and worth fighting for.

Do not lose heart,
chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote