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Re: For those with liver mets
Nancy,
My oncologist hasn't given me too much insight into the arm ache. My understanding comes from my interventinal radiologist.
When I had the cryosurgeries, the interventional radiologist said it was "referred" pain. Kind of like when we have headache because we have a sinus infection.
I am confident the radiologist was right because following the cryosurgeries my "stomach" didn't hurt but my arm really ached. After a couple of days of healing my arm stopped hurting.
Prior to beginning the TDM-1 trial my arm started to ache so badly that I had to take something to sleep at night. After 2 rounds of TDM-1, it doesn't hurt any more. That is my arm chair quarterbacking that TDM-1 is working..while I wait for the official scan results in mid-November.
I am sure this is more info than anyone ever wanted!!!
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2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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