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Laurel · 08-16-2018, 10:45 AM

Katharine,

What you may be experiencing is a reaction to the Keytruda that is causing mucositis, the swelling of your mucous membrane. This happened to me with my first infusion of AC. I felt breathless, and stuffy. It was weird. I couldn't cry and have a right old pity party for myself because crying REALLY made me feel like I was drowning! I limited my activity to lessen the shortness of breath and it resolved after a few days.

My Onc told me later that I should have called and they would have treated it (I do not recall with what or the intervention). It resolved after a day or two. I do recall her saying that I would not experience it with my subsequent infusions and she was correct. I hope that will be the case with you.

Laurel

08-16-2018, 10:45 AM	#13
Laurel Senior Member Join Date: May 2008 Location: Hershey, PA. Live The Sweet Life! Posts: 2,005	Re: Keytruda Katharine, What you may be experiencing is a reaction to the Keytruda that is causing mucositis, the swelling of your mucous membrane. This happened to me with my first infusion of AC. I felt breathless, and stuffy. It was weird. I couldn't cry and have a right old pity party for myself because crying REALLY made me feel like I was drowning! I limited my activity to lessen the shortness of breath and it resolved after a few days. My Onc told me later that I should have called and they would have treated it (I do not recall with what or the intervention). It resolved after a day or two. I do recall her saying that I would not experience it with my subsequent infusions and she was correct. I hope that will be the case with you. Laurel __________________ Smile On! Laurel Dx'd w/multifocal DCIS/IDS 3/08 7mm invasive component Partial mast. 5/08 Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH 0/5 nodes 4 AC, 4 TH finished 9/08 Herceptin every 3 weeks. Finished 7/09 Tamoxifen 10/08. Switched to Femara 8/09 Bilat SPM w/reconstruction 10/08 Clinical Trial w/Clondronate 12/08 Stopped Clondronate--too hard on my gizzard! Switched back to Tamoxifen due to tendon pain from Femara 15 Years NED I think I just might hang around awhile....