HER2 Support Group Forums - View Single Post - Stage v- a hard to swallow fact

Lori R · 01-07-2013, 07:02 PM

Dear Yanyan,
I am so proud of you for recognizing the power of "labels" and how meaningless they are.

Even as a 5 1/2 year IV survivor that has actively battled this disease, I HAVE benefited by the research results as the years have ticked by. It has been a life very much worth living and I still have hope that between TDM-1 and Perjeta, there are more options.

Hang in there and don't accept anyone's label if it does not empower you!!!!

Lori

01-07-2013, 07:02 PM	#9
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Stage v- a hard to swallow fact Dear Yanyan, I am so proud of you for recognizing the power of "labels" and how meaningless they are. Even as a 5 1/2 year IV survivor that has actively battled this disease, I HAVE benefited by the research results as the years have ticked by. It has been a life very much worth living and I still have hope that between TDM-1 and Perjeta, there are more options. Hang in there and don't accept anyone's label if it does not empower you!!!! Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)