HER2 Support Group Forums - View Single Post - almost 14 years NED breast cancer and apparently it's back in my lungs

Cathya · 02-12-2019, 08:33 AM

Hi Flori;

So nice to hear from you. I haven't been too active on the board recently. I'm doing well with treatment but find the se's a bugger. I'm so sick of coughing and bloody, sore noses and being tired all the time. I wonder how much of that frustration is the weather lol. Ah well the alternative is much worse lol. It's so cold and icy here. We're expecting 30 some cm of snow (around 15 plus inches) this afternoon and more tomorrow. I'd like to go out and do some shopping this morning but there's ice everywhere....the roads are good but the walkways and driveways are treacherous. So rather then risk a fall I'll just stay in. I'm Canadian so used to this time of winter but it is a bugger. I lived in Winnipeg for 20 years so I really shouldn't complain about the weather here in Ontario.

I hope your mood improves following treatment. I would find it very difficult to deal with your clinic I know and I can only hope you're feeling so much better and optimistic about the treatments themselves that your frustration passes quickly. Have you been dancing lately?

Thinking of you,

Cathy

02-12-2019, 08:33 AM	#111
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: almost 14 years NED breast cancer and apparently it's back in my lungs Hi Flori; So nice to hear from you. I haven't been too active on the board recently. I'm doing well with treatment but find the se's a bugger. I'm so sick of coughing and bloody, sore noses and being tired all the time. I wonder how much of that frustration is the weather lol. Ah well the alternative is much worse lol. It's so cold and icy here. We're expecting 30 some cm of snow (around 15 plus inches) this afternoon and more tomorrow. I'd like to go out and do some shopping this morning but there's ice everywhere....the roads are good but the walkways and driveways are treacherous. So rather then risk a fall I'll just stay in. I'm Canadian so used to this time of winter but it is a bugger. I lived in Winnipeg for 20 years so I really shouldn't complain about the weather here in Ontario. I hope your mood improves following treatment. I would find it very difficult to deal with your clinic I know and I can only hope you're feeling so much better and optimistic about the treatments themselves that your frustration passes quickly. Have you been dancing lately? Thinking of you, Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18