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ElisabethH · 01-11-2011, 03:56 AM

Hi all

I went for my 6 month check in December and all was fine. The last two bloods have shown low protein, probably because I'm living on a diet of pasta! have found I can eat salads and vegetables as long as I have carbs as well. Diarrhea down to almost 0. Had fish and chips the other day when visiting London and that was disastrous - maybe it's the deep frying? Did seem to have trouble with scallops on New Year's Eve, so maybe it's a fish thing.
As to the liver question - I have had to sign a new agreement as I was told someone on the trial had died of liver failure, but I was assured the person was taking Neratinib alongside chemotherapy, which I am not. I now have to have a liver function blood test every six weeks which is a bit of a pain, but my onco is going to use the next one on the 27th to check the tumour markers as well, so not a wasted visit. Liver function fine so far.
It's good to think I've passed the 6 months, but somehow I may miss the attention when it is all over!

01-11-2011, 03:56 AM	#100
ElisabethH Junior Member Join Date: Jun 2010 Posts: 4	Re: Neratinib Clinical Trial Hi all I went for my 6 month check in December and all was fine. The last two bloods have shown low protein, probably because I'm living on a diet of pasta! have found I can eat salads and vegetables as long as I have carbs as well. Diarrhea down to almost 0. Had fish and chips the other day when visiting London and that was disastrous - maybe it's the deep frying? Did seem to have trouble with scallops on New Year's Eve, so maybe it's a fish thing. As to the liver question - I have had to sign a new agreement as I was told someone on the trial had died of liver failure, but I was assured the person was taking Neratinib alongside chemotherapy, which I am not. I now have to have a liver function blood test every six weeks which is a bit of a pain, but my onco is going to use the next one on the 27th to check the tumour markers as well, so not a wasted visit. Liver function fine so far. It's good to think I've passed the 6 months, but somehow I may miss the attention when it is all over!