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Lolly · 05-10-2007, 04:19 PM

Hi Brony; I feel for you. You mentioned in your previous post that you are prepared to travel, could you travel to the US to consult with an oncologist here who could prescribe it for you? Since it's shipped directly to the patient once an onc approves it and writes the prescription, possibly you could have your onc there contact an onc here and they could work together on this as one of the problems would also be the prescribing onc maintaining a chart.
Some of the oncs involved in the clinical trials of Tykerb are available for second opinions (a couple of members have consulted with Dr. Pegram for example), and possibly would be willing to work with your onc this way.

05-10-2007, 04:19 PM	#3
Lolly Senior Member Join Date: Aug 2001 Location: Oregon Posts: 1,756	Hi Brony; I feel for you. You mentioned in your previous post that you are prepared to travel, could you travel to the US to consult with an oncologist here who could prescribe it for you? Since it's shipped directly to the patient once an onc approves it and writes the prescription, possibly you could have your onc there contact an onc here and they could work together on this as one of the problems would also be the prescribing onc maintaining a chart. Some of the oncs involved in the clinical trials of Tykerb are available for second opinions (a couple of members have consulted with Dr. Pegram for example), and possibly would be willing to work with your onc this way. __________________ Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation. Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.