HER2 Support Group Forums - View Single Post - Disappointed, frustrated, sad, scared and a lil angry...

chrisy · 12-17-2012, 11:18 PM

Wow Steph, great insight. Sometimes we get so caught up in onco-world we forget that there are sometimes even better"experts"

Jessica, you do not ask too much. I'm so sorry you had to waste so much time with that ignorant and overly arrogant RESIDENT. You deserve so much more respect than that.

I like steph's suggestion, and hope you can successfully pursue that or another path. Yes, this week is a "tough one" for scheduling, but remember it is also a week when the universe is preparing for a miracle.

Stay strong my friend. I hope you are right now getting a deep restful nights sleep and will awaken with renewed faith, strength, and resolve to find that door that is miraculously opening for you.

I don't know what made me write all that without any forethought and almost no crazy iPad spellcheck misadventures.

Much love,
Chris

12-17-2012, 11:18 PM	#3
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: Disappointed, frustrated, sad, scared and a lil angry... Wow Steph, great insight. Sometimes we get so caught up in onco-world we forget that there are sometimes even better"experts" Jessica, you do not ask too much. I'm so sorry you had to waste so much time with that ignorant and overly arrogant RESIDENT. You deserve so much more respect than that. I like steph's suggestion, and hope you can successfully pursue that or another path. Yes, this week is a "tough one" for scheduling, but remember it is also a week when the universe is preparing for a miracle. Stay strong my friend. I hope you are right now getting a deep restful nights sleep and will awaken with renewed faith, strength, and resolve to find that door that is miraculously opening for you. I don't know what made me write all that without any forethought and almost no crazy iPad spellcheck misadventures. Much love, Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure