HER2 Support Group Forums - View Single Post - Chronic pain- who's got it?

Saygoon · 03-15-2014, 03:43 PM

I had "a spot" as they called it on my pelvic bone that was pressing on a nerve. It got so bad that I couldn't walk. after 5 radiations BINGO no more pain. I still have pain now and then down to my foot. They took me off aromasin for the time being and that ended the body aches. So trial and error the aromasin may be causing your body aches - maybe they could switch you to something else, but the nerve pain I hope is not from cancer but maybe from sciatic problems. As far a pain meds I use a combination of aleve and very stong ibuprophen - together they seem to work. I have bones mets in my spine/pelvic area so I understand your pain. Hope you get some relief soon. Chronic pain can wear you down mentally as well as physically.

03-15-2014, 03:43 PM	#3
Saygoon Senior Member Join Date: Jul 2013 Location: Hot Springs, South Dakota Posts: 158	Re: Chronic pain- who's got it? I had "a spot" as they called it on my pelvic bone that was pressing on a nerve. It got so bad that I couldn't walk. after 5 radiations BINGO no more pain. I still have pain now and then down to my foot. They took me off aromasin for the time being and that ended the body aches. So trial and error the aromasin may be causing your body aches - maybe they could switch you to something else, but the nerve pain I hope is not from cancer but maybe from sciatic problems. As far a pain meds I use a combination of aleve and very stong ibuprophen - together they seem to work. I have bones mets in my spine/pelvic area so I understand your pain. Hope you get some relief soon. Chronic pain can wear you down mentally as well as physically. __________________ Paula T. (saygoon means dog, yes I am Native) DX March 2012 Stage IV w/ 5 bone mets to spine 2 on ribs Herceptin, Zometa, Taxotere and Anasterole and of course radiation 2/14/2014 2 mets on pelvic bone Stop Anasterole continue on Herceptin and Zometa start radiation (again) 2/24/2014 start T-DM1 continue Herceptin and Zometa 4/28 more radiation that brings total to 5 (10 days ea) - I think I will soon glow in the dark.... 6/01/2014 Great news! Rib mets gone, 4 of 5 spine mets showing new bone growth and pelvic mets shrinking. 8/28/2014 T11 on spine is being stubborn started Perjeta, Herceptin, Zometa and Taxol - goodbye hair! 9/04/2014 Tomo therapy - pain finally gone 1/3/2015 - starting New Year out as still stable. Feeling positive 2/23/2015 - problems with left leg, bone met flaring up - MORE radiation Whew! 2/24/2015 Stress fracture in right side of pelvic - (great just great) back to wheelchair then walker then..... 2/26/2015 Off Taxol!! Still on Perjeta, Herceptin and Hormone Blocker starting to feel a little more human. 4/10/2015 Cancer has spread to spinal fluid - not sure where I go from here 6/29/2015 Omaya Port placed,begin IT Herceptin on 7/7/2015