[flynny]

Hi Debbie,

I know I'm in a VERY low category. But it is true. I had my surgery done in Manchester, NH an incredible surgeon (Dr. Ned Dalton) performed it. The original path came back ER+5% and the PR was neg, HER2+++. My story is complicated a bit, so I'll try and keep it short. My mother in 2004 was dx ER/PR+, Her2+, but did everything in Manchester,NH. In April '07, she was dx with a brain tumor, had a crainiotomy, 2 tx of SRS, and then on 8/10/07, it had turned into Leptomeningeal cancer. After 14 days of WBR, she went home and then in October, it had gone to her spine. She was down between BWH/DFCI and a rehab from 10/23/07 until this past February '08. Her oncologist (who I never mentioned about my "bloody nipple discharge" that I experienced in Nov '07) couldn't believe that I had just been dx'd and my mother was ultimately dying of met breast to the brain. Anyhoo, after getting a 2nd opinion at the DFCI for my surgery, I chose to stick with Dr. Dalton (same person my mother went to) because it was the exact same opinion. Ok, so now I have my mastectomy, in recovery, get my path report, call my mom's onc (Dr. Nancy Lin) and I wasn't about to stay up here to do all my tx's, so I sent all my path slides, reports etc to her. She too was a little perplexed about my results, so she had her top 3 THREE doctors take a look at it. The results (shown below) are pretty accurate in my opinion. Especially because the ER didn't change and the PR did to +. So where the heck does that put me??? In a very low category (she said approximately 8-10% of the women are dx with this low of a ER/PR). Dr. Lin also thought maybe I wasn't HER2+ because of the ER/PR results. Life is just very bizzare and you just don't know where it will take you. I am very optimistic because of the tx I have had, however I'm just looking for some advice on the scans (I saw a previous thread talking about this same subject). We are not a statistic, each of us are INDIVIDUALS. I have a very strong opinion about that one. I certainly don't sit here every day and wonder "will I reoccur", but I do wonder why I can't just get some kind of baseline for "peace of mind". I think for me, I just got done chemo, so I'm in that limbo where do I belong, what happens from here etc, etc. I'm sure ALL of you can relate to my questions and curiosity. Thanks for your support and assistance with this one.