View Single Post
Old 09-15-2011, 04:28 PM   #9
yankeebikachic
Senior Member
 
yankeebikachic's Avatar
 
Join Date: Jul 2008
Location: Durham NC
Posts: 73
Re: ? about Tykerb Duration

I think so.
And yes, thought about not telling him and taking a lower dose. Prob. is I only have a few refills. I may start taking 3 pills with food this weekend and see how I feel. If not any better, I will try 3 pills without food.
Kind of scary, I am very fortunate to be ned for so long, and I feel like I am being a 'brat' but I cannot discount the way my body feels after taking T.
None of us can afford to recur and I don't want to but the feeling that I get after taking T is really making me think.
__________________
4/06 Found small lump, biopsy + at 34 yrs.
5/06 Diagnosed IIIC, lumpectomy, 11/11 nodes HER2+
6/06 port placed. 4 Ad/Cyt and 4 Tax.
11/06 bilateral mastectomy
12/06 begin Rads
1/07 Finished Rad-started H, weekly for one year.
1/08. Finished H, scan showed activity in nodes, Doc says 'not to worry about it' and sends me on my way.
7/08 Scan shows numerous involvement in armpit, also large active nodes in supr. clav.
Doctor refused to give me HER2 meds.
8/08 fired doctor, found another. Started Tykerb/Xeloda. After one round, nodes are shrunk and normal sized!
12/08 NED continue Ty/X
3/09, 6/09, 9/09, 11/09, all scans show NED
Dropping X, continue Tykerb
As of 6/10, 3/11 still negative, continuing Tykerb...
yankeebikachic is offline   Reply With Quote