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Re: ? about Tykerb Duration
Gosh what a big decision to make! I felt the reduced dose was a really good suggestion as at least you will be getting some tykerb and you will know if that sorts out the chemical thing.
One of the things we don't have is any good research that tells us how long after being NED on tykerb or herceptin it is safe to stop. I thought I remembered someone posting on the board that Dr Slamon tried to wrestle his patients off herceptin after about 6-7 years as he felt that the patient had most likely got resistence to it by that length of time.
Hopefully someone else will chip in. I suspect it's more difficult to know as tykerb has not been around as long as herceptin so there may be fewer anecdotal reports.
Ellie
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