? about Tykerb Duration
Hello everyone!
Just wondering how many of you have been on or are on Tykerb.
I had a talk with my onc yesterday--I have not been feeling that great lately immediately after taking my T.--sort of chemical feeling if you will???
So we discussed stopping it. I am still NED as far as I know.
I'm sort of scared I am going to recur if I stop but frankly the chemical feeling that I get is new and kind of scary too!
I have been on it for I guess three years now and it has held me. I have been taking 5 pills every day.
Any input is appreciated. We decided to stop and scan in 2 months but after talking with my hubby about it now not so sure that is the best thing.
Thanks everyone!
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4/06 Found small lump, biopsy + at 34 yrs.
5/06 Diagnosed IIIC, lumpectomy, 11/11 nodes HER2+
6/06 port placed. 4 Ad/Cyt and 4 Tax.
11/06 bilateral mastectomy
12/06 begin Rads
1/07 Finished Rad-started H, weekly for one year.
1/08. Finished H, scan showed activity in nodes, Doc says 'not to worry about it' and sends me on my way.
7/08 Scan shows numerous involvement in armpit, also large active nodes in supr. clav.
Doctor refused to give me HER2 meds.
8/08 fired doctor, found another. Started Tykerb/Xeloda. After one round, nodes are shrunk and normal sized!
12/08 NED continue Ty/X
3/09, 6/09, 9/09, 11/09, all scans show NED
Dropping X, continue Tykerb
As of 6/10, 3/11 still negative, continuing Tykerb...
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