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futurefocus,
I'm sorry to hear you are suffering so much with the Herceptin but at the same time thankful that I'm not the only one. I am just about at the six month mark with my Herceptin and believe me I can't wait until my year is up. My oncologist says the same thing -- never heard of bone/muscle/joint pain being a side effect. I'm not mistaken they mix the Herceptin with benzole alcohol. I believe that Lani posted something to that effect. In her post it also stated that the Herceptin could be mixed with saline water. I think that I will ask my oncologist about that -- at this point anything is worth a try. I do fully understand how your musceleosketal system feels. Some days I get up and it just feels like my feet are just going to snap! I guess all we can do in hang in there. Thanks for sharing. At least now I know I'm not alone.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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