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Old 10-17-2012, 08:46 AM   #24
norkdo
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Join Date: Jul 2011
Location: ottawa canada
Posts: 367
Re: Surgery Thurs. the 4th

Dearest Nancy,
I have had computer problems...no laptop for two months. Today I logged on to my new laptop and the first thing I did today on my laptop is catching up with your recon. I howled! You are a riot.

I feel awful abt your 12 hour surgery tho!! !I am writing the identical account of my Sept 17 2012 recon operation to Denise but in case I screwed up the private messaging system, and also to say hello to all of you kind warm women, like Amy, whom I also consider my friends, here is me catching you all up on me.

Here is my account:


I had a silicone implant put into my good breast, with a dif surgeon standing next to my plastic surgeon and an old revered surgeon, retiring, supervising these two adorable boy geniuses. Adore my surgeons. Right before I went under, my Plastic Surgeon, (PS) said "Okay, ladies and gentlemen, let's get this plane off the ground" and I asked him later bout it and he said they were just teasing the anaesthesia people for talking like they were in an airport control room.

The silicone was chosen by virtue of being half the size of my real breast, which weighed 8/10ths of a litre. Ridiculous to have that slapping around on my chest for the past year. Grrrrrr.....

The PS chose a 420 ml silicone and wrapped it in the skin left dangling there after they cut the end off the breast and dug out the food craved by HER2 cancer cells (i.e. breast tissue).

An hour prior to surgery my PS and his resident came to me in scrubs to draw on my existing boob and he told me the other cute surgeon is now offering a nipple sparing version of the left boob silicone insertion operation. I simply asked PS his opinion as sensation was not as high a priority, I had decided, after long consideration (tough to give up never feeling anything sexual again on the top half of my body, believe you me.) PS said "I will give you excellent looking nipples, yes, yes, without the elevation, simply tattoes, yes, yes, I know."

In addition, during the insertion of the doubly-wrapped silicone on my good, left side, the PS worked for hours to untether my mastectomy scar from last summer from the back of the wall, so he could slide an expander under it. He only put 150 ml water into it.

Nevertheless I woke up screaming in a panic attack in the recovery room, nobody around that I loved, to hold my hand...my stupid idea, thinking I was braver than i was....it is not like people didnt offer....how wonderful were the two nurses. "Hold my hand!! To the other nurse: "Don't let go of my hand!" To the first one: "YES. KEEP RUBBING MY SHOULDER" To the other one: "NO. DON'T GO!!!| Finally I started breathing normally after they managed to convince me.. ("You're shouting at me!! Why are you being mean!!) All of this as if from a spoiled twelve year old child. And the "mean" one understanding the morphine coming out of my speech, and lowering her voice, becoming my substitute mother, so longed for throughout this awful journey........

Anyway all was great for a week, then the silicone breast cuts became infected or whatever and the whole front of the breast turned black.....fell off, then green and yellow. A month later here I am. It is still sticky, yellow, slough under bandages that need changing by the Victorian Order of Nurses (WeCare) every two days.

The PS says this is why he double wrapped the silicone in my old big bad 8/10ths of a litre breast skin. In case i lost one layer of skin i would have more skin under it. "You just think of everything," I joked to him. He is nonplussed abt the yellow goo still pouring out of it. (necrosis). "There is plenty of healthy pink skin coming in behind the dead skin so we didn't even need the second layer of skin." So I am good, fortunate, lucky, etc and excited bout my new boobs. Sad about losing nipples, like all of us. While you sleep your sheets, throughout your life, as a woman have brushed over you and given you pleasant dreams. Over it now. I'm good with the trade off. (parallel boobs, etc)

I went through bad depression bout after about three weeks of bi-daily bandage changes by the nurses, and i should slap myself i am so lucky that the nurse service is free here in canada, but am crawling out of that stupidity now and i just got the right expander inflated yesterday by 80 mls. All by myself like a big girl.
__________________
fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew."
found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet.
diagnosed may 10 2011

mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b.
her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one
chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals.
radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see.....
10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012.
Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh.


I have a blog where I document this trip and vent.
www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore
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