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Old 09-18-2012, 02:49 AM   #18
jkdowl
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Join Date: Jan 2011
Posts: 17
Re: Is there benefit in surgery for stage iv's

I have a very similar story as your daughter. Diagnosed 12/10 with mets to spine (multiple vertebrae) from start. 9 months of taxol/herceptin/zometa. Stopped taxol 10/11, have been on taxol and zometa since then. I have not had surgery, my surgeon monitors primary tumor closely, but there is no palpable tumor left and told me if there is any signs of enlargement that I will have mastectomy immediately. I receive my treatment at Massachusetts General hospital in Boston. I have one of the best breast surgeons in the area. I am involved in a vaccine trial at John Hopkins hospital and the oncologist there agrees with the plan. I am nervous about not getting primary tumor out and I may eventually have to but for now I feel comfortable with the plan.
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40 yo. mom to 7 yo old twins girls and 5 year old son

Dx- 12/6/10- stage IV to bone
Taxol/Herceptin/Zometa
CT scans and bone scan- STABLE 4/19/11, 6/12/11, 10/4/11
Stopped taxol 9/29/11
Continue herceptin,zometa
John Hopkins vaccine trial 4/12-11-12
CT scans and bone scan- NED 4/12, 7/12, 10/12, 2/13,6/13
Brain MRI-clear 6/13
Left breast progression 8/14, Ct scan and bone scan-clear
brain MRI- clear
Mastectomy left breast 9/14

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