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Believe51 · 06-10-2009, 08:14 PM

Alice, I would be honored to help you out and I am truely touched with your mission. When we first found out about Ed, I started first with the John W Nick Foundation for Male Breast Cancer. I personally talked to Nancy Nick, the Founder and President; she was inspiring and placed hope and light into the darkest of days. She is an amazing woman on a mission just like us all and the website is informative. Her foundation does attend San Antonio too and this is vital for our men and boys. Dr Susan Love's website had the wrong male breast cancer statistics and I contacted her, within 24 hours her website was adjusted. I was rather impressed with these actions, even though there is not much on MBC. Many sites do not have the updated or correct information. When doing an article for our local paper, a man from the ACS actually quoted the wrong statistics and another piece of important info. Just be careful where you tread.

To be honest and knowing what I know now....I would search right here, Lani is my Santa Claus and has been a great asset to this site with her constant presents. She has also been a wonderful gift towards my ammo for Mighty Oak's fight. Also, search the San Antonio Breast Cancer Symposium archives and watch what you can find (Oh La La!). Listen to me ramble....I will talk to you personally, atleast you will be able to get a word in edgewise (wink)!

I'll pm you before I sign off tonight.>>Believe51

06-10-2009, 08:14 PM	#2
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Alice, I would be honored to help you out and I am truely touched with your mission. When we first found out about Ed, I started first with the John W Nick Foundation for Male Breast Cancer. I personally talked to Nancy Nick, the Founder and President; she was inspiring and placed hope and light into the darkest of days. She is an amazing woman on a mission just like us all and the website is informative. Her foundation does attend San Antonio too and this is vital for our men and boys. Dr Susan Love's website had the wrong male breast cancer statistics and I contacted her, within 24 hours her website was adjusted. I was rather impressed with these actions, even though there is not much on MBC. Many sites do not have the updated or correct information. When doing an article for our local paper, a man from the ACS actually quoted the wrong statistics and another piece of important info. Just be careful where you tread. To be honest and knowing what I know now....I would search right here, Lani is my Santa Claus and has been a great asset to this site with her constant presents. She has also been a wonderful gift towards my ammo for Mighty Oak's fight. Also, search the San Antonio Breast Cancer Symposium archives and watch what you can find (Oh La La!). Listen to me ramble....I will talk to you personally, atleast you will be able to get a word in edgewise (wink)! I'll pm you before I sign off tonight.>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!