[ElaineM]

You seem to be doing a very good job of setting up the things you need and want.
Don't worry about your husband not being as supportive as you would like him to be. We women are strong and are very able to get important things done.
We are very good at finding help and support by ourselves when we need to do that.
I read Dr. Slamon is working with other doctor/scientists developing new drugs (targeted therapies) as part of the Stand Up to Cancer Project.
However, he might be willing to consult about your situation. In addition I wonder if making an appointment to see the breast cancer oncologist at the Johnson Comprehensive Cancer Center where Dr. Slamon works might be useful? You will get to see an oncologist who specializes in breast cancer. Dr. Slamon certainly influenced the way things are done at that facility.
Good luck. You are doing a good job putting one foot in front of the other. Keep going. Hang in there.
Feel free to share whatever you want to share with us.
Most of the members of this group have had alot of ups and downs with breast cancer and can be supportive whenever you want to discuss things with us.