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Old 10-22-2014, 11:34 PM   #5
Pamelamary
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Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 447
Re: Stage IV Survivors out there?

Dear Gift,
i am almost 3 years post Stage IV diagnosis. After 6 rounds of taxotere, I am currently living well on Herceptin, Tamoxifen and Denosumab for the bones.However there are many others, like StephN and AndiBB, in whose footsteps I hope to follow!
Best wishes to you..... Pam
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Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
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