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agness · 01-06-2016, 01:39 PM

Annette -- SRS is something that is done pretty quickly over a number of days, though I understand that sometimes treating a larger number of brain mets might require grouping of sessions over a longer period of time - like a month or so.

Are you able to afford treatment outside of Canada or with a private cancer hospital. It doesn't sound like they are correct and they are giving you the party line "standard of care" but you are one person with one cancer and they need to meet you where you are.

No, I don't think they are right and I just met with two teams here in Seattle that will work on everything out of the box and treat the disease where it is and not where it is -- at Swedish Hospital and Seattle Cancer Care Alliance.

01-06-2016, 01:39 PM	#11
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: PSA: Get your brain scanned Annette -- SRS is something that is done pretty quickly over a number of days, though I understand that sometimes treating a larger number of brain mets might require grouping of sessions over a longer period of time - like a month or so. Are you able to afford treatment outside of Canada or with a private cancer hospital. It doesn't sound like they are correct and they are giving you the party line "standard of care" but you are one person with one cancer and they need to meet you where you are. No, I don't think they are right and I just met with two teams here in Seattle that will work on everything out of the box and treat the disease where it is and not where it is -- at Swedish Hospital and Seattle Cancer Care Alliance. __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.