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Old 08-31-2011, 09:03 AM   #1
kiwigirl
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Join Date: Jan 2010
Location: Matakana which is one hour north of Auckland, New Zealand.
Posts: 89
Unhappy Really bad Brain MRI

Hi All

I had a brain MRI two days ago and this time the results were fast proberley due to the fact it was not good.

Anyway the results are two new small tumors progression in all other tumors almost as large as when i started. There is a lot of white matter on old tumors (narcosis?). And edema around one and also pushing ventricle over.

I meet with my onc today. Yesterday i had a full body pet scan and i find out those results to day. I am so scared.

The only reason i saw my onc was to get a clearance to fly and now this. He says maybe if nothing else in my body we would go ahead with the gamma knife (cost a lot and I fly to Honolulu) At this stage I'm not sure. He did put the fear in me about radiation narcosis. Don't know what else to do.
I'm trying to stay strong but there are a lot of tears. And I can't sleep again.

Sorry to sound so flat.

luv to all
Jacqui xx
__________________
Oct 2009 Masectomy 6 cm Tumor . Sentinal node biopsy , Node Positive . Her2 + er/pr -.
Nov 2009 X3 Taxane and Herceptin, X3 FEC
March 2010 25 Rads
March 2010 continued on Herception untill 16 Dec 2010
May 2010 Ultra Sound .... ALL CLEAR... NED
August 2010 started vaccine trial University of Washington
7th Dec 2010 finished vaccine trial
20th Dec 2010 Port removed
3rd Feb no longer ned brain mets
23r Feb start VMAT radiation
August 2011 two new mets to brain and others starting to grow again !!!!
August start tykerb and xeloda
Dec 1 MRI all small brain mets gone. Largest shrunk by 50% only three small ones to go 17mm,8mm,6mm. Mets on there way out. Yeah
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