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Old 04-20-2014, 09:34 AM   #2
Nurse4u2day
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Join Date: Feb 2014
Location: California
Posts: 439
Re: Vinorelibine + Herceptin???

I don't know anything about the vinorilibline, but the TH. I do. I have a very aggressive cancer and toss in her2 lucky me. Anyhow I did the 4 dd Ac and lost all my hair on that , also bad se. I have now been on TH for 2 1/2 months . My hair actually started to grow back.other then that few side effects. The worse for me is the tiredness . While on AC my mass ( sheets no ball of tumor that's ibc for you 5cm x 5 cm) slowly started to shrink, progress yes but not what I was hoping for. I am now on round 10 of 12 of TH and we can no longer feel anything. Oncologist says my tissue feels like plain old breast tissue. You have a tough decision ahead of you . When I did the AC I to had to decide between AC and some newer tx that just came out in oct 2013. And in all honesty if the taxol didn't work before you would have to press me hard to try it again even with the herceptin . But I have heard it works great with herceptin as it is with me thus far.
__________________
]11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
11/19/21- 8 years today I officially remain NED and in 12 days I will be having a lymphnode transfer to help decrease some mild lymphedema! Still working, living life and soon to see a day I thought never would happen and that’s becoming a grandparent June 22nd.
11/19/2023 - 10 years since diagnosis and I remain NED
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