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Re: Tamoxifen Issues
I am so glad you posted this. I have been having severe issues with constipation, nerve pain, headaches and have been tested and scanned but nothing shows up. I have been on Tamoxifen since 2011and have had all the side effects noted. It didn't occur to me that Tamoxifen may be causing these other issues. When I saw your post, I decided to take myself off Tamoxifen for a week. I'm day 3 into being off Tamoxifen and my issues have dissipated immensely! I'm hoping to find another alternative if it was indeed the Tamoxifen causing me problems - I do not want to live in pain everyday from this medication. I have to take my life back at some point!
Keep me posted on what they give you alternatively - I am premenopausal so the other alternatives won't be an option for me.
Jessica
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11/17/10 - Diagnosed with 4.5cm tumor in right breast, IDC, Stage 2, Nuclear grade 2, ER+ PR+ HER2+
12/13/10 - Lymph node biopsy - negative
12/28/10 - Started neo-adjuvant treatment along with clinical trial with 4 rounds of AC chemo every 3 weeks
3/15/11 - Began weekly Taxol/Herceptin infusions along with 750mg of Tykerb taken by mouth daily
6/28/11 - Finished last cycle of Taxol
7/27/11 - Breast MRI shows tumor has dissolved, remarkable reaction to chemo
8/31/11 - Lumpectomy, Sentinel Node biopsy. Node negative, clear margins, 7mm of cancer left over from chemo.
10/05/11 - Started radiation, 5 days a week for 7 weeks.
11/8/11 - Finished radiation
3/21/12 - Last Herceptin!
3/26/12 - Port removed!
Tamoxifen for 5 years
8/4/15 - Hysterectomy & bilateral salpingo-oophorectomy. Due to large fibroids. No cancer!
8/8/15 - Started Arimidex
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