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chrisy · 06-25-2008, 05:17 PM

Joy, my dear, you post ANYWHERE you darn well please!

The thrombocytopenia (I bet we never knew we'd know THAT word when we were in school!) is totally to be expected and rebounds really quickly. Mine bounced way back up by day 15 and have so far always been back in the normal range by day 21. So if you were going to make someone else chop the veggies (since you shouldn't be playing with knives in your delicate state) you better do it this week!

I also had flulike symptoms for about 3 days after my first infusion. Fever, headache, tired. After a few treatments I no longer get the fever or headache but I still do feel tired for a week or 2!

But I think you should stop cleaning the house since I'm sure that's probably giving you a headache.

How are your liver function levels? That's been my biggest problem with the trial, but I am told that I'm unusual (although I prefer the term "special") in that regard.

Put down that cleaning rag. NOW!

Much love
Chris

06-25-2008, 05:17 PM	#2
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Joy, my dear, you post ANYWHERE you darn well please! The thrombocytopenia (I bet we never knew we'd know THAT word when we were in school!) is totally to be expected and rebounds really quickly. Mine bounced way back up by day 15 and have so far always been back in the normal range by day 21. So if you were going to make someone else chop the veggies (since you shouldn't be playing with knives in your delicate state) you better do it this week! I also had flulike symptoms for about 3 days after my first infusion. Fever, headache, tired. After a few treatments I no longer get the fever or headache but I still do feel tired for a week or 2! But I think you should stop cleaning the house since I'm sure that's probably giving you a headache. How are your liver function levels? That's been my biggest problem with the trial, but I am told that I'm unusual (although I prefer the term "special") in that regard. Put down that cleaning rag. NOW! Much love Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure