Thread: meltdown
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Old 11-01-2006, 05:27 PM   #11
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Gayle,
Meltdown? Pity party? OH MY GOSH, send me an invite, I hate to miss those, and try to make sure I have one at least quarterly. Seriously, none of this is fair, and that is unfortunately part of the territory. You are certainly entitled - but you are not alone. Sorry you are having to deal with this.
I have to echo what others have said. You have MUCH to be hopeful about.

First, forget the statistics - I know that in every time you read "Her2 cancer" it is followed by the words "associated with poor prognosis". The stats that comment is based on are pre-herceptin and now with adjuvant herceptin available for early stagers, "prognosis" is significantly better - by at least 50%. Ignore anything more than a few years old - it's old news. The Her2 target is probably THE most active area of research and there are promising new drugs in the pipeline.
Second, being HER2+ and ER+ may sound like a bad thing - but you could also think of it as presenting a "target rich environment" as there are good treatments for shutting down these pathways.
You said in one of your earlier post that you have "no mets yet". That is great! Keep in mind, the chemo, then Herceptin and whatever else is to hopefully turn that into "no mets, period"

Just take it a day at a time, what you feel is natural and perfectly ok. When I was getting chemo I would be in tears by noon every Monday. One thing that worked for me when I got too into the "it's not fair" was to also include the good things in my life that are "not fair" - like having a wonderful hubby, great friends, all the "blessings" that not everyone gets. That always gets me smiling at least for a little while!

Hang in there,
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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