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Old 02-01-2018, 08:04 PM   #5
jacqueline1102
Senior Member
 
Join Date: Apr 2012
Posts: 183
Re: When to consider ending treatment?

Hello Colleen,

I am out 6 yrs and 4 mths from my dx of metastatic breast ca. I, too, long for when I can quit. I am grateful for LT remission status and feel the treatment fatigue as well. I have joked with my onc; if I stay in remission up to year 10 would he take me off the herceptin. He just smiles. For now I remain on good ole' Vitamin H. Luckily I am able to work FT and have decent health ins.
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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