HER2 Support Group Forums - View Single Post - Spot on lungs found on PET

Myra Lynn · 08-09-2011, 09:04 PM

My heart goes out to you for the loss of your grandson. It must be very hard to take good care of yourself at a time like this. I hope you get the help and support you need.

I also think the nurse spoke out of turn. However, I will tell you my story about PET scans since it may be relevant. I have had erratic blood tests, so I have had two PET scans this year. One was 11 months ago and showed a "hot spot" in the lobal area where I had had radiation, with no corresponding mass. Last month, again due to blood test results, I had another PET scan. This one was entirely clear. It supports the idea that the metabolic activity on the PET scan last year was a result of radiation tx.
I am hoping for good test result for you too. Let us know.

08-09-2011, 09:04 PM	#20
Myra Lynn Senior Member Join Date: Jul 2009 Location: New York Posts: 106	Re: Spot on lungs found on PET - nurse says dont lose any sleep!!! My heart goes out to you for the loss of your grandson. It must be very hard to take good care of yourself at a time like this. I hope you get the help and support you need. I also think the nurse spoke out of turn. However, I will tell you my story about PET scans since it may be relevant. I have had erratic blood tests, so I have had two PET scans this year. One was 11 months ago and showed a "hot spot" in the lobal area where I had had radiation, with no corresponding mass. Last month, again due to blood test results, I had another PET scan. This one was entirely clear. It supports the idea that the metabolic activity on the PET scan last year was a result of radiation tx. I am hoping for good test result for you too. Let us know. __________________ Mammo 6/2/09 left breast biopsy 6/12/09 Bad news 6/18/09! 7/17/09 lumpectomy Stage 1- 0.5 cm IDC , DCIS 25% HER2 +++, ER+95%, PR+10% 8/09 Muga Scan 65 8/19/09 beg. TCH 1Xwk. 12 wks. last chemo 11/26/09 IMRT - 33 txs. 1/12/10 to 3/11/10 Herceptin 1X week for 1 yr. Ends 8/10 Femara 3X wk. started 1/13/10-too much pain in middle finger; switched to Arimidex 4/28/10 -permanently swollen, but no pain. Will continue for 5 yrs. 10/2/11 CT/PET scan due to elevated CA27.29 of 40.5. Hot spot in irradiated area. Score goes down again to normal range. Subsequent blood tests go up and down until 2 tests in row at elevated levels of 42.5 & 45.7. 7/9/11 Intermittent vertigo. As a precaution contrast MRI to head. NED. 8/15/11 Erratic CA27.29 may be result of new auto immune disease, bullous pemphigoid (skin problem) Off Arimidex for 6 wks. to see if trigger finger improves Switched to Aromasin, 3X wk., but affected my liver. On 2/23/12 taken off AI's.