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linn65 · 03-13-2015, 04:41 PM

Hi there,

I am not sure how old you are, but I had the same exact question. My first ONC did all those blood tests to see if I was post menopausal at 47 or 48 and they came back, and I was. Then I went to a 2nd ONC and she said that wss a useless endeavor because all of the therapy and tamoxifen would show that I was because its supposed to be shutting down your estrogen.

Now, I sm 49 and had a reoccurrence, and I am not on arimidex. It has I think caused my joints to feel like I have arthritis. She is letting me go off for 3 weeks to find out which I started this week. I am also on Herceptin and projecta so it could be that too. However, again I might have had progression so I will be having scans next week and If I have I will get TDM1. And then who knows what SE's I will have. Another day in the life.....

She did say tamoxifen was tried and true for 40 years and I was premenopausal when I started and I should stay in it for 5 years and then we would discuss an AI but reoccurance happened so treatment path did too. Hope this makes sense and hope things go well for you!!

03-13-2015, 04:41 PM	#7
linn65 Senior Member Join Date: Dec 2012 Location: Attica, IN Posts: 371	Re: Advice needed ... Tamoxifen or AI? Hi there, I am not sure how old you are, but I had the same exact question. My first ONC did all those blood tests to see if I was post menopausal at 47 or 48 and they came back, and I was. Then I went to a 2nd ONC and she said that wss a useless endeavor because all of the therapy and tamoxifen would show that I was because its supposed to be shutting down your estrogen. Now, I sm 49 and had a reoccurrence, and I am not on arimidex. It has I think caused my joints to feel like I have arthritis. She is letting me go off for 3 weeks to find out which I started this week. I am also on Herceptin and projecta so it could be that too. However, again I might have had progression so I will be having scans next week and If I have I will get TDM1. And then who knows what SE's I will have. Another day in the life..... She did say tamoxifen was tried and true for 40 years and I was premenopausal when I started and I should stay in it for 5 years and then we would discuss an AI but reoccurance happened so treatment path did too. Hope this makes sense and hope things go well for you!! __________________ myleftlump.wordpress.com - started blogging my IDC breast cancer 7/2012 diagnosed with multiple solid lesions 7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2 9/2012 biopsy on lymph node - showed malignant 9/2012 Pre-adjunctive TCH chemo. 12/6/12 MRI after Pre-adj. Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow. 12/18/2012 left masectomy with axillary nodes Size 3.2 CM, Nottingham score 9/9 Grade 3, no evidence of in situ carcinoma Areas of angiolymphatic are identified Carcinoma is 0.5 cm from inked deep Margin of excision Attached axillary lymph nodes: metastatic Carcinoma in 6 of 8 nodes. Size of largest node 1.5 cm Extracapsular ER + 73%, PR+2%, HER2+ 2/27/13 6 weeks of IMRT radiation finished 2/2013 Started on Tamoxifan 5 years. 8/2013 will take last Herceptin, 17 treatments total every 3 weeks. BRCA1 & BRAC2 - Negative August 28, 2013 DIEP flap on the left breast. February 2014 Nip & Tuck March 14, 2014 nipple reconstruction and removed port. August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV August 28, 2014 herceptin And projeta starting and port put back in. 3/18/15 stopped arimidex. 3/18/15 progression....Tdm1