HER2 Support Group Forums - View Single Post - Brain Mets came back -- Help Needed

I think you should get a second opinion. I know it's hard to change and one more thing to have to do but obviously you are having some differences there and it is very important to have faith in your onc. I think you may have lost some? ?

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4/06 Found small lump, biopsy + at 34 yrs.
5/06 Diagnosed IIIC, lumpectomy, 11/11 nodes HER2+
6/06 port placed. 4 Ad/Cyt and 4 Tax.
11/06 bilateral mastectomy
12/06 begin Rads
1/07 Finished Rad-started H, weekly for one year.
1/08. Finished H, scan showed activity in nodes, Doc says 'not to worry about it' and sends me on my way.
7/08 Scan shows numerous involvement in armpit, also large active nodes in supr. clav.
Doctor refused to give me HER2 meds.
8/08 fired doctor, found another. Started Tykerb/Xeloda. After one round, nodes are shrunk and normal sized!
12/08 NED continue Ty/X
3/09, 6/09, 9/09, 11/09, all scans show NED
Dropping X, continue Tykerb
As of 6/10, 3/11 still negative, continuing Tykerb...

12-25-2010, 04:12 PM	#15
yankeebikachic Senior Member Join Date: Jul 2008 Location: Durham NC Posts: 73	Re: Brain Mets came back -- Help Needed I think you should get a second opinion. I know it's hard to change and one more thing to have to do but obviously you are having some differences there and it is very important to have faith in your onc. I think you may have lost some? ? __________________ 4/06 Found small lump, biopsy + at 34 yrs. 5/06 Diagnosed IIIC, lumpectomy, 11/11 nodes HER2+ 6/06 port placed. 4 Ad/Cyt and 4 Tax. 11/06 bilateral mastectomy 12/06 begin Rads 1/07 Finished Rad-started H, weekly for one year. 1/08. Finished H, scan showed activity in nodes, Doc says 'not to worry about it' and sends me on my way. 7/08 Scan shows numerous involvement in armpit, also large active nodes in supr. clav. Doctor refused to give me HER2 meds. 8/08 fired doctor, found another. Started Tykerb/Xeloda. After one round, nodes are shrunk and normal sized! 12/08 NED continue Ty/X 3/09, 6/09, 9/09, 11/09, all scans show NED Dropping X, continue Tykerb As of 6/10, 3/11 still negative, continuing Tykerb...