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Old 03-18-2007, 07:33 PM   #6
dchips1
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Join Date: May 2006
Location: Mesa, Az
Posts: 219
My hair thinned on taxol,carbo,herceptin

My hair got very baby fine thin (like a 10 mth ) old, with 6 months of taxol, carbo and herceptin. I did every week x 3 then off 1 week herceptin only. I take care of special needs kids fulltime, so I did my chemo on Friday mornings, slept most of Friday, felt good the first part of Saturday, Made it to Church on Sunday with naps after, Mon nausea was pretty yucky By Tues/Wed was ready for pizza. Get good nausea meds (if you are younger and more active the nausea can tend to take you out more) Because it interferes with your keeping up. Make sure you take nap and body quite activities, (my one little guy likes to lay by me while we play quite games on the bed) it helps conserve your energy. I had other people do my store errands so I could save my energy and spend with my family time also. There is a web site called chemochicks.com I bought a beaded head covering from, most people look at it and don't think twice I live in AZ and it is cool your head breathes and even my teens will go out in public with me!! I am not a wig person, I just lost 99.9% of my hair this morning from brain radiation and I wore my beads to church and my 6 year old wants to "paint my head". My hair was 10 in long I had it cut very short prior to chemo, and I finished chemo in Aug and by Sept I went to work at the school as a nurse with thin but hair. Good luck to you, and your little people in your life. Darita
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dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain

1/29/14 HIHO HIHO its off to Neuro surgery I go





Life is Good when you wake up in the morning and take a breath and know that God has given me another day.


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