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Old 06-12-2013, 06:50 AM   #26
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: Steroid Smackdown Round 3!

Friends!
Down to 2mg/day! So far so good!
My balance isn't "normal", but I'm okay with that. It's waaaaay better than it was a month ago...when I was still on 12mg/day.

I felt so much more like myself yesterday...I not only cooked a delicious dinner...what my boys have affectionately named Polish Soulfood - pierogies, kielbasa, onions, cabbage... I even made strawberry shortcake for dessert. Baked the little cakes myself! (Not sure if I've ever shared my deep aversion to baking. I'm generally not very good at it...so I don't enjoy it. But the shortcakes came out very well...much to my surprise!)

Hoping for more good (read that energetic) days ahead. Although, my eldest jokingly reminded me yesterday..."Don't get too excited Mom...you felt great last June too...
then you fell and shattered your wrist...
followed closely by the discovery of not one, but two brain tumors....
Something's bound to crop up this summer too!"
Such a smarta$$! Where in the world would a child of mine learn such sarcasm?!
Happily, the very fact that he feels comfortable needling me about it...tells me he's not worried. Always music to my ears!

Thanks for checking in on me!
Denise
Denny
Neesy
Neddy
Decey - That's what my younger sister called me when we were kids

An NEDenise, by any other name...you know the rest!
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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