HER2 Support Group Forums - View Single Post - Adding Carboplatin to Perjeta and Herceptin

Andrea Barnett Budin · 08-04-2012, 02:37 PM

Dear Sheila,

You are a shero for sure. Your avatar reads like a novel. But you are so strong and brave and determined, I always think of you in uber laudatory terms! Plus through it allllllllllllllllllll -- you have that quick sense of humor that never fails to make me smile. Thank you for all you do and give of yourself, my Sister!

My husband is having major nerve pain (from his eye to his thigh) and they have him on Neurontin (Gabapentin). He takes 300 mg and it is mildly helping. He can't really handle a higher dosage, but it is a drug that can be given up to 1800 mg. You might be a good candidate for that. I pray you get some relief. Please ask your doctor.

I am over here in your corner, rooting for you and sending you loving, healing energy, my Friend!

Big gentle hugs,

Andi

08-04-2012, 02:37 PM	#6
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Adding Carboplatin to Perjeta and Herceptin Dear Sheila, You are a shero for sure. Your avatar reads like a novel. But you are so strong and brave and determined, I always think of you in uber laudatory terms! Plus through it allllllllllllllllllll -- you have that quick sense of humor that never fails to make me smile. Thank you for all you do and give of yourself, my Sister! My husband is having major nerve pain (from his eye to his thigh) and they have him on Neurontin (Gabapentin). He takes 300 mg and it is mildly helping. He can't really handle a higher dosage, but it is a drug that can be given up to 1800 mg. You might be a good candidate for that. I pray you get some relief. Please ask your doctor. I am over here in your corner, rooting for you and sending you loving, healing energy, my Friend! Big gentle hugs, Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...