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Thank you Kathy! I appreciated you telling me what NED means too. I have alot of new language to learn as I navigate this new territory.
I guess I would be starting treatment as NED status at this point. I am concerned about whether the drug would be effective as a preventive or prophylatic measure in my case, since it is not used that way normally. I spoke to a physician who conducted a Herceptin study and he said it was "unconventional". And there is the issue of possible side effects. I am glad you did not experience them. Yes, the decision making is daunting. And it is all something of a "crap shoot" based on the best available information... thanks again....
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