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Old 10-05-2006, 10:41 AM   #7
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Talking Rise above

Dear Rosie -
I love that name - there is a very sweet cat in my family by that name. She is mostly white - so I don't know why that name ...

When we are tired and beaten down by this disease it IS hard to endure such slaps and ignorant treatment as your relative has forced on you.

Tom's idea of the message is great - but you may live a long time with all the drugs we have now. If you have been silently enduring, then it may be time to mention something if you and/or your kids are ill-treated by this person again. (I would not offer to do her any more favors, either, if it adds to your stress over this situation.)
But, something along the lines of the "You are not being kind doing this, but I see that and forgive you" that has been suggested.

I agree with Sherry not to mention your funeral, this seems to be what she wants to hear. Just try to ignore her as best you can since it is a group setting. If she is used to getting attention, ignoring her WILL get her attention.

Try not to stress over this gathering - don't let one selfish person ruin your day and the days leading up to it.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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