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Old 09-18-2014, 11:40 AM   #4
kk1
Senior Member
 
Join Date: Sep 2005
Posts: 182
Re: Round 2 herceptin/projeta & quit my job..

Linn;
First I am so sorry to hear that you are stage IV but it sounds like giving your mind and body the space and time for the treatment to work is the right thing for now. With a stage IV DX it is very straight forward to apply and received ss disability. You can simply apply on line (I put the link below) and then they will call you to come in for a very quick interview.

6 years ago I felt the same as you, after 2 liver resections and a lung resection, I figured enough was enough even though I loved my job. I quit and applied on-line the same day....a few weeks later I was approved for ss benefits. I was on ss disability for 2.5 years and it allowed me to better take care of myself and have time with my family...at the time I really thought I did not have much time left on this earth and like you I did not want to spend it working. To my surprise and everyone else too, I again became NED ....I think partly because I did give myself the space to heal and fight. After a few years of NED I still missed my work and through the ss disability wages to work program I slowly went back part time. Don't despair you don't have to always be super woman--give your mind and body the space to get rid of the invaders.

http://www.socialsecurity.gov/applyfordisability/
__________________
KK1
April 2004 de novo metastatic left breast 1.5cm her2++,er+/pr+ with 2 small liver mets
weekly taxotere,herceptin, xeloda
Sept 2004 NED-3 herceptin, zoladex,aromasin
Dec 2006 recurrence in liver
Feb. 2007 liver resection left lobe removed-herceptin, zoladex, switch to Arimidex
NED 16 months added zometa
May 2008 new lesion in liver 15mm Tykerb/Xeloda/Herceptin
July 2008 stable...yeah!
Sept 2008 NED again !!!
Jan 2009 fell off the wagon again spot back in the liver and fell out of menopause.
Feb 2009 RFA and 2nd liver resection to remove spot ---back on the NED wagon again continue Tykerb, Herceptin.
March 2009- oophrectomy added Femara and bi-annual Zometa
May 2009- scans clear but suspect lung nodule
June 2009- Lung VAT wedge resection to remove nodule---fungus ball not cancer!! phew
Aug 2009- NED
Nov 2009-scans again clear YAHOO!
March 2010- scans clear continue Tykerb, Herceptin, Femara, Zometa Q6mo
Nov 2009-Nov 2019 scans clear done every 6 months


Feb 2020 - Fell out of the NED wagon hard! single liver lesions and large infect cyst. 3 weeks in ICU.
March 2021- 5 cycles perjeta, herceptin, navelbine. lesion stable.
June 2021 - 3rd liver resection to remove single liver lesion. Continued perjeta, herceptin.
Nov. 2021- PET scan show 5 hot nodes near liver. 9 cycles Kadcyla
June 2021- PET scan shows progression. nodes size unchanged but even more SUV uptake.

July 2021- start ENHERTU
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