HER2 Support Group Forums - View Single Post - NEW POOPY UPDATE to NEW update on chrisy...scanxiety replay on the horizon

Joan M · 02-08-2012, 06:04 AM

Chrissy,

Well, I guess it ain't nothing until the ump calls it. And a strike would be the best. We cancer survivors are always dealing with waiting for the next test result.

I had a lot of confusion after having the lung RFA. SUV was hitting the roof due to inflammation initially and then afterward to a fungal ball growing in the cavity. But at first nobody knew exactly what was going on, or whether the tumor was growing back.

I would agree about the LVEF perhaps being bogus. When I restarted Herceptin in 2007 after not taking it since 2004, my first reading was 70% and, for various reasons, I felt that the percentage was incorrect. The second reading 3 months later was 60%, more than 10% lower, and my onc took me off H for 3 months. Ouch!

I would agree with Sheila: stupid tumor. And it's days are numbered.

Joan

02-08-2012, 06:04 AM	#28
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Re: NEW update on chrisy...scanxiety replay on the horizon Chrissy, Well, I guess it ain't nothing until the ump calls it. And a strike would be the best. We cancer survivors are always dealing with waiting for the next test result. I had a lot of confusion after having the lung RFA. SUV was hitting the roof due to inflammation initially and then afterward to a fungal ball growing in the cavity. But at first nobody knew exactly what was going on, or whether the tumor was growing back. I would agree about the LVEF perhaps being bogus. When I restarted Herceptin in 2007 after not taking it since 2004, my first reading was 70% and, for various reasons, I felt that the percentage was incorrect. The second reading 3 months later was 60%, more than 10% lower, and my onc took me off H for 3 months. Ouch! I would agree with Sheila: stupid tumor. And it's days are numbered. Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!