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Old 04-17-2014, 01:39 PM   #22
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Re: debsing is an angel

How blessed your mom was to have you by her side. That takes enormous strength. You should be proud of yourself!

You will never look back and regret and that is a gift.

You two fought an amazing battle. It seems the cancer was just too far ahead of you, on so many fronts, to catch a break. And focusing on the HER2+ aspect and not the very daunting positivity of your mom's hormones is a lesson for all of us. Cancer has many faces, many components.

I have 2 daughters. I was 50 when dx and I have asked them to begin mammograms for a base line reading in their 30s. Now in their 40s they do annuals, and one does an ultrasound as well.

I also believe strongly that the first of each month we must all examine our own breasts. I never had a lump. A marble or a pea. I had a general hardness of my entire left breast. I did not know that ANY change whatsoever should be immediately looked after. I never thought I had cancer.

I did move my annual mammo up and make an appt w/my GYN. I thought it must be a cyst. I had never had a single lump. Turned out what I had was a 9 cm tumor -- lobular (vs the more common ductal) which is deeper and more aggressive.

When I recurred, the bc was throughout my liver. My blood work reflected a very slight elevation in liver enzymes. 3 mnths later, it was noted without concern by my docs. 3 mnths after that, when it was again mentioned without need to worry, I stood firmly and asked for an ultrasound. This led to a CT scan which led to a biopsy.

We must actively participate in our own wellness.

So as a mother, I am asking you, Deb's daughter (I wish I knew your name) to take good care of yourself. This is what I tell my dghtrs, not to scare them but to arm them well...

With love,
ANDI
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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