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annmask · 05-31-2013, 09:09 PM

I am going a bit non-conventional as I am not interested at all in WBR. I will have partial brain radiation to my cerebellum and brain stem. The largest and most active mets are in that area, and the spots above the cerebellum are very small. It is pretty scary especially as Kadcyla doesn;t get into the brain, so I will need to find a trial pretty soon. I was told I had a spot on the Neratinib trial that would be there in 6 weeks, but it was given away while I waited the 6 weeks for my follow up MRI. Very disappointing. I will just trust that I will be able to get on a trial that works for both my body and brain!

05-31-2013, 09:09 PM	#24
annmask Senior Member Join Date: Sep 2010 Location: New hampshire Posts: 44	Re: kadcyla side effects I am going a bit non-conventional as I am not interested at all in WBR. I will have partial brain radiation to my cerebellum and brain stem. The largest and most active mets are in that area, and the spots above the cerebellum are very small. It is pretty scary especially as Kadcyla doesn;t get into the brain, so I will need to find a trial pretty soon. I was told I had a spot on the Neratinib trial that would be there in 6 weeks, but it was given away while I waited the 6 weeks for my follow up MRI. Very disappointing. I will just trust that I will be able to get on a trial that works for both my body and brain!