HER2 Support Group Forums - View Single Post - Questions about "Compassionate Use" for Trial Drugs

Becky · 08-02-2018, 06:10 AM

I am so sorry about the corner you are in. Can you go back on something that worked before like one of the taxanes with Herceptin? Can you convince your onc that maybe it turned hormones positive so you can try a hormonal too? I think they might try the Taxane and Herceptin to see and give alittle time to get a new trial or a compassionate use. I will continue to think for you

08-02-2018, 06:10 AM	#5
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: Questions about "Compassionate Use" for Trial Drugs I am so sorry about the corner you are in. Can you go back on something that worked before like one of the taxanes with Herceptin? Can you convince your onc that maybe it turned hormones positive so you can try a hormonal too? I think they might try the Taxane and Herceptin to see and give alittle time to get a new trial or a compassionate use. I will continue to think for you __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"