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Old 12-24-2013, 07:47 AM   #8
Poppy
Junior Member
 
Join Date: Nov 2013
Posts: 3
Re: Tykerb Lung Breathing reaction - HELP

Mtngrl - the CT scans of my wife's lung showed what was described as extensive interstitial shadowing of both lungs. The Xray I saw showed most of the lungs as white, obscuring everything else. This is indicative of inflammation of the lung tissue and could also be described as diffuse. She was treated for every possible cause due to the severity of the condition and got better , so we cannot deduce what cured the inflammation. All infection tests were negative, but this is not conclusive. It was most likely either an unusual infection or a Tykerb reaction. The oncologists say probably infection but other medical advice points to Tykerb. Whatever it was seems to have built up while she was on steroids for a brain met. The symptoms were suppressed until the steroids stopped when it rapidly became life threatening.

She recovered strongly with 100% Oxygen, 3 antibiotics, high dose steroids and withdrawal of Lapatinib, but this was a very serious event - it took two weeks to get off Oxygen and we are just tapering the last of the steroid dose this week, so fingers crossed. It was very debilitating and a month in bed means it will be some time before she has got all her muscles back into full use.
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