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Still riding my unicorn
Hi Everyone,
I had a scan yesterday and just received a call from the clinical trial oncolongist. I had a 22% reduction of the tumours.
Truth is I was not surprised as I was feeling much better around new year and I felt a massive difference in my energy level.
So I am releived although since last week I have been feeling something in my airways again (I had tumours growing there, and removed before clinical trial started) so I am still a bit worried as to whether the trial is still helping now. But I will try to forget about this throat/airways for now and celebrate.
I think it may well be another potential arm to add to our her2 ammunition, hope I will be riding this unicorn for a very very long time
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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