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Re: Anyone on a Dr Gonzales protocol
Elaine:
Thank you for your encouraging words of support. I am trying to hang in there. I will be talking to my oncologist about the work of the UW tumor vaccine group and whether we can address the skin mets through/as a trial participant if the tykerb and xeloda (once I can go back on chemo after I am done with WBRT) does not do the trick. Also, there is the future promise of TDM 1 
I have also started working with a naturopath and acupuncturist to support me in this journey.
Taking it one day at a time....
Sharon
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Momma Sharon
1/7/10 Diagnosed IBC while BF twins a pleomorphic infiltrating lobular carcinoma; 12x9 cm; ER+, PR+, HER-2/neu++; Ki-67 80%
1/25/10 MRI of brain/scan of bone neg-
1/27/10 PET Scan-hypermetabolism in left breast axillary; right mediastinal, left and right supraclavicular and internal mammary lymph nodes
1/29/10 Port Placement, started 24 weeks of chemotherapy with: Trastuzumab- Herceptin, Paclitaxel- Taxol, and Vinorebine- Navelbine
7/9/10 Finished 24th chemo treatment
7/15/10 PET/CT showed excellent response in nodes and breast; possible bone mets
7/16/10 Began Herceptin@ 3 wks and Zometa @6 wks plus Lupron and Femera
7/29/10 Diagnosed with HER+,ER-,PR- skin mets; started Doxil & Cytoxin; no response
11/5/10 PET/CT mets to bone, liver, lung, adrenal; started Xeloda
11/12/10 Brain MRI-Brain Mets, stopped Xeloda, started WBRT 11/16 and Tykerb on 11/19
12/6/10 completed 15 rounds WBRT
12/19/10 restarted Xeloda
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