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Old 06-13-2007, 05:46 PM   #6
Odette
Senior Member
 
Join Date: Apr 2007
Location: Shaker Heights, Ohio
Posts: 86
Go Down You Markers!

Oh Flori,

I see that you are worried. We do not like those markers going anywhere but down down down...
I tried googling margin of error and markers. I did not come up with a definite answer, but it seems like it is very possible that the rise in your numbers is within the margin of error of these kinds of tests.
I also see your logic of going back to the usual dose of Tykerb and maybe reduce it after a couple of months when you had good scans and good markers for a while.
I don't see anything wrong with calling your oncologist and telling him that you'd be more comfortable going back to the 5 Tykerb at least till your scans in July. The Xeloda dose is based on height and weight and you mentioned before that you are thin. Is it possible that he thinks the lower dose of Tykerb is appropriate for you because of that?

The way I (and probably most of us) feel: rather take some immediate discomfort then the anxiety about the future.
Wishing you good luck with your decision and sending GOOD SCANS/LOW MARKERS vibes your way.

Let us know what you'll do,
love and prayers,
Odette

PS. My onc does not even do markers, he just does not believe in them.
__________________
May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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